I’ve always known I’ve wanted children. It’s never been a question in my mind, I just knew it would be somewhere in my future. However, once I learned of my lupus diagnosis I had a lot of questions about whether it would be even be possible. At my last rheumatologist appointment, he gave me the …
322,000. That is how many people are said to have lupus in the US. Bloggers with lupus are constantly talking about awareness and education. But according to a study from 2012 there is a giant communication gap between lupus sufferers, caretakers and physicians. We all need to work together to fix this problem. It starts …
Today’s Prompt: If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say? Oh Erin. Everything is going to be alright. I promise. You are relieved to have a diagnosis, because you have known for awhile now that something is wrong, but at …
Today’s prompts: Patients, what advice or tips do you have for caregivers? My fiance and my mom. They are the two people I turn to most when I’m having lupus issues. My fiance more than my mom because he sees me every day. He sees me at my worst. I try to make sure he …
Today’s Prompt: Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self-advocacy! Have you been newly diagnosed with Lupus? Check out these resources I found …
Well, it wasn’t just one day. My malar rash showed back up. What is a malar rash? A malar rash, also known as a butterfly rash, is often seen in Lupus. It can be red, or even purplish, and can sometimes feel a little scaly. It can stretch from cheek to cheek across the nose …
