mixed connective tissue disease

How Communication Can Help Save a Life

322,000.  That is how many people are said to have lupus in the US. Bloggers with lupus are constantly talking about awareness and education. But according to a study from 2012 there is a giant communication gap between lupus sufferers, caretakers and physicians.  We all need to work together to fix this problem. It starts …

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Care Page – Sharing Lupus Resources

  Today’s Prompt: Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self-advocacy!   Have you been newly diagnosed with Lupus? Check out these resources I found …

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