After over 2 years, today was my first prednisone free day. My rheumatologist and I have slowly been tapering my dosage down for the past 4 months, and I have only really noticed a slight change in my energy levels. My blood pressure already runs a little low, and I have had some trouble with …
When you have lupus, it can be so hard to find that fine line between doing what you can and doing too much. I find I am too much of a perfectionist. Sometimes I really just try too hard. I try too hard to do, I say yes too much. I try too hard to …
Today’s Prompt: Art project! This project doesn’t even require you to get your hands dirty! Take some time today to go to Wordle and create a word cloud or tree from a list of words associated with your condition, blog, or interests. Think of it as a collage for your thoughts. Inspire others with your words in …
Today’s Prompt: Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self-advocacy! Have you been newly diagnosed with Lupus? Check out these resources I found …
Well, it wasn’t just one day. My malar rash showed back up. What is a malar rash? A malar rash, also known as a butterfly rash, is often seen in Lupus. It can be red, or even purplish, and can sometimes feel a little scaly. It can stretch from cheek to cheek across the nose …
I have been feeling so well here lately, so today has me worried. I felt a little achy yesterday but just brushed it off as being tired or working out too much. Today? My bones and joints are just aching and I feel wrung out. I know I’m not invincible but I was really getting …
