Thank You For Featuring My Story H2W Apparel!

I’ve had a lot of ups and downs on my journey living with (and defying!) lupus, but this is definitely an up! Thank you to H2W Apparel  and Maggie O’Brien for featuring me and most importantly, raising awareness for SLE in the process. Maggie did an amazing job conveying just what I wanted to share (and …

Thank You For Featuring My Story H2W Apparel! Read More »

Working on the Genetic Autoimmune Puzzle

I was reading this article about new research on lupus, genes and why it seems to afflict more men than women: https://www.statnews.com/2018/01/29/lupus-women-genetics/ So interesting!  I know I have genes that make me more susceptible to lupus and other autoimmune issues. I’m going to have to do more research of my own on this. Have you had …

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Have Lupus? Speak Up!

We have an amazing opportunity through a Lupus Patient-Focused Drug Development (LPFDD) meeting happening on September 25. The Lupus and Allied Diseases Association, Lupus Foundation of America and the Lupus Research Alliance​ are joining together to host this meeting which will be driven by people like you and me who have lupus, and also caregivers …

Have Lupus? Speak Up! Read More »

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