I’ve had a lot of ups and downs on my journey living with (and defying!) lupus, but this is definitely an up! Thank you to H2W Apparel and Maggie O’Brien for featuring me and most importantly, raising awareness for SLE in the process. Maggie did an amazing job conveying just what I wanted to share (and …
Have lupus or another autoimmune issue? Need a listening ear or just to know someone else might understand what you’re going through? I hope you’ll join us! https://www.facebook.com/groups/defyinglupussupportgroup
I was reading this article about new research on lupus, genes and why it seems to afflict more men than women: https://www.statnews.com/2018/01/29/lupus-women-genetics/ So interesting! I know I have genes that make me more susceptible to lupus and other autoimmune issues. I’m going to have to do more research of my own on this. Have you had …
Grace [greys] noun 1. Favor or goodwill. 2. Mercy, clemency, pardon. Mom Guilt. It’s real. I said it. It’s getting worse as the years go by and there are parenting rules for every.little.thing. “Back to Sleep” “Breast is Best” “Rear Facing 4Evar” “No peanuts before 1” Then the next month: “Give’em all the peanuts!” …
We have an amazing opportunity through a Lupus Patient-Focused Drug Development (LPFDD) meeting happening on September 25. The Lupus and Allied Diseases Association, Lupus Foundation of America and the Lupus Research Alliance are joining together to host this meeting which will be driven by people like you and me who have lupus, and also caregivers …
If you’re dealing with a chronic disease (lupus or otherwise) there are so many things that are out of your control and it can be hard to find anything good. If you’re dealing with an active flare, or just the normal every day aspects of disease, it can be hard to focus on anything else. …
