Awareness

May is #LupusAwarenessMonth

In honor of May being Lupus Awareness Month, I am sharing a fact about lupus every day in May. Please share and raise awareness about lupus and its impact on the lives of millions of people like me, and our families. Please share! Let’s raise awareness so we may find a cure!

Thank You For Featuring My Story H2W Apparel!

I’ve had a lot of ups and downs on my journey living with (and defying!) lupus, but this is definitely an up! Thank you to H2W Apparel  and Maggie O’Brien for featuring me and most importantly, raising awareness for SLE in the process. Maggie did an amazing job conveying just what I wanted to share (and …

Thank You For Featuring My Story H2W Apparel! Read More »

Have Lupus? Speak Up!

We have an amazing opportunity through a Lupus Patient-Focused Drug Development (LPFDD) meeting happening on September 25. The Lupus and Allied Diseases Association, Lupus Foundation of America and the Lupus Research Alliance​ are joining together to host this meeting which will be driven by people like you and me who have lupus, and also caregivers …

Have Lupus? Speak Up! Read More »

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