Care Page – Sharing Lupus Resources



Today’s Prompt:

  • Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self-advocacy!


Have you been newly diagnosed with Lupus? Check out these resources I found helpful in my own journey!



Websites tackling Lupus basics and more:

Questions to Ask Your Doctor About Your Condition

Lupus Information Sheets on Lupus

Your Own Best Advocate: How to be an Active Participant in Your Care

Lupus Foundation of America (LFA)

Alliance for Lupus Research

We Have Lupus Forums

WebMD Lupus Community

Lupus International

S.L.E. Lupus Foundation



Help with the emotional side of Lupus and autoimmune disease:

Managing Lupus Stress More Effectively by Changing Your Thoughts and Actions

Who Am I Now?: Living with an Autoimmune Disease

Quotes to help with Stress Relief

Meditation Talks

7 Strategies to Developing a Positive Mental Attitude


Books I have personally read and recommend:



The First Year–Lupus: An Essential Guide for the Newly Diagnosed by Nancy C. Hanger








Lupus Q + A by: Robert G. Lahita





Women and Autoimmune Disease : The Mysterious Ways Your Body Betrays Itself by: Robert G. Lahita







Leave a comment with any great links or books on Lupus or autoimmune diseases that you would recommend!

Tell me what you think!