5k for a Cure!

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If you live in the southwestern Missouri area (or know someone who does) I hope you will join me this Saturday the 14th for Midwest Technical Institute’s 1st Annual P.O.P. for Lupus 5k Walk/Run in Springfield, Missouri.

Feel free to come and walk, or run with me and help raise awareness for lupus!!!

Check out the Facebook page: https://www.facebook.com/events/956642067718220/?ti=cl or sign up directly at https://runsignup.com/Race/MO/Springfield/MTIPOPforLupus5k. I hope I will see you there!!

 

-Erin

#PutOnPurple!

put on purple

 

Outside of the tv show House, most people have never even heard of lupus. We need to change that!! -Erin

Lupus is one of the cruelest, most mysterious diseases on earth—an unpredictable and misunderstood autoimmune
disease that ravages different parts of the body. Research shows lupus is more pervasive and more severe than people think, and has an impact that the public doesn’t realize. You can change that! Help the Lupus Foundation of America raise awareness of lupus and show support for those who suffer from its brutal impact.

On May 20th, Put on Purple™ to show your support for the millions of people affected by lupus. It’s an easy way to raise awareness about this cruel and mysterious disease. Learn more by visiting lupus.org/putonpurple and submit your photos at putonpurple.tumblr.com!

-From the Lupus Foundation of America

May 10th is Lupus Awareness Day

Head on over to WorldLupusDay.Org and sign the petition to help make lupus a priority for the World Health Organization!

 

What is lupus

My Boys Are One! +a video

I can hardly believe it! My little boys are 1!

We had their birthday party last weekend…

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Cowboy-themed, obviously.  I think everyone had a good time, including the boys, which was extremely important to me.  SO much planning went into that day, but I had fun doing it. 🙂

Their birthday was on Thursday and I made a video highlighting this past year. I cry a little every time I watch it.  I hope you enjoy it!

I never knew I could love two little humans so much. 🙂

This Messy Life.

35 weeks pregnant twins

 

That was this time last year! (Read about it here)

I can remember barely being able to get my feet in those flip flops because my feet were so swollen. Constant doctor appointments. Trying to keep working. Feeling like I needed a nap constantly. I would get exhausted taking a shower and straightening my hair. It was a big. deal. 🙂 It is amazing how much your life can change in a year, though at least the constant need of a nap hasn’t changed.

 

My life now:

Boys collage

I normally have messy hair, no makeup, I’m wearing a t-shirt and have a cup of coffee somewhere within reach.

But with these boys around I’m amazed at my life.  Seeing them learn new things. Chaos at bath time. Babies growing into little toddlers able to reach the top of tables.  Singing silly songs.  Pretending to smell stinky feet and always getting a giggle. Hugs. Kisses. Feeling my eyes well up with tears as I get out the next size of jammies.  Watching their faces light up when they see their daddy.

Sure, there’s teething and diaper rashes and lots (and lots) of crying.

I never knew what being a twin mom would be like. But this is the best. THE best messy life ever.

And should this be the last thing I see
I want you to know it’s enough for me
‘Cause all that you are is all that I’ll ever need
I’m so in love, so in love
So in love, so in love

There’s noone luckier.

23andMe Lupus Study

23andMe Lupus Study

Over 2,000 people with lupus have submitted their saliva to 23andMe for DNA testing for the lupus study they are conducting.  Though they are still short of their goal of the 5,000 people they need to start their analysis.

Last fall, I signed up and received my kit in the mail.  There is health information to fill out, and you have to submit a vial of saliva (which is much easier than you would initially think).  For participating in this study you receive your test kit for free!  In fact, by filling out a few follow-up health surveys I have received Amazon gift cards just for my time.  However, this is nothing compared to what I have received by learning about my genetic makeup, and the information they will hopefully find out about lupus.

While they are finding new lupus genes, I hope you will consider participating in this study.  Check out 23andme.com/lupus.  It is SO important to have more studies done on lupus and the genetic components of this disease.  We need to find a cure. I’m one of the lucky ones who, at this point in my journey, has a mild case that is not life-threatening. But, there are still 10-15% of people with lupus who will die prematurely due to this disease.  Please, if you have lupus, go to the website and just do some research: 23andme.com/lupus.

Let’s get closer to a cure!!

If you don’t have lupus, but would still like to have your DNA tested, you can still order your kit today! <<referral link!!