Category Archives: Healthy Living

6 Simple Ways to Cope with a Chronic Disease

If you’re dealing with a chronic disease (lupus or otherwise) there are so many things that are out of your control and it can be hard to find anything good.  If you’re dealing with an active flare, or just the normal every day aspects of disease, it can be hard to focus on anything else.  I have found that it is the simple things that keep me going… and happier.

  1. badesalz-1620261_1920Taking a hot soak in the tub with some epsom salts and/or essential oils.  The salt can help with body aches along with the hot water. It also will help to relieve muscle tension.  I throw the oils in just because I like it to smell good too. 🙂
  2. Drinking lots of water.  Seriously. I try to drink at least 80 oz of water a day.  I know it is good for my kidneys (which I try to keep as healthy as possible).  My brain feels clearer.  I feel less hungry (I eat when I’m stressed, bored or sad).  My body craves it! Plus, my skin always looks the best when I’m been drinking my water regularly. It is one GOOD thing I can do for my body no matter what else is going on.
  3. Watching funny videos on YouTube.  I know this is all stupidly simple stuff, but it works! As a mom I end up watching a lot of toddler cartoons and the news during the day, and maybe a show or two at night… but The Walking Dead isn’t exactly funny and gets my adrenaline going too much.  Watching some stupid videos on Youtube helps take my mind off things for awhile, and most of the time I find something funny and I can finally laugh a little bit.
  4. Going to bed early.  Sometimes you just have to.  My body tells me when I need it. By 6 or 7 pm I feel it. That exhaustion that only people with chronic disease can understand.  You don’t even want to eat or brush your teeth, you just want rest.  Let yourself go to bed early. Everything will still be there tomorrow, but you yourself will feel better and can face it all then.
  5. Look up an inspirational quote for how you’re feeling.  When I need some oomph because I am feeling physically or psychologically garbage-like I will do some Googling and find a quote that really speaks to me.  I try to share them with you all too, because from your emails I know a lot of you go through the same things.  I try my best to focus on that quote for the rest of the day.reading-1142801_1920
  6. Curl up in a comfy chair with a blanket and read a book with a cup of tea or coffee. Now, I haven’t had much time to do this lately, but this is absolutely one of my favorite things to do. No matter the time of year or what is going on, this is a surefire way to help me feel more at ease and help me cope with whatever is going on.

So. Very simple things. And this isn’t all of them, but just a few that are easy to accomplish in a day when you don’t feel like you can do much else.  Take care of yourself! Try to do at least one simple thing to bring a little joy and peace to your day.

What are some things YOU do to help yourself?  Please share!

See What Happens.

As I have been dealing with this:



I am learning more about this:



Soooooo, I’m not exactly sure what is wrong, but I do know my cell phone is heavy enough to do some major damage to small appendages!

My toe is looking better the more I have been resting it though, so we shall see how it looks this week as to whether I will be continuing my c25k training!

Send me healing thoughts!

C25k Progress – Done with Week 3!

3-16-16 run


This was Week 4 Day 1 of C25k!  I’m taking the day off today as yesterday felt a little rough.  I have been going through the program a little faster than is suggested… but only because it has felt great so far!

(Don’t know what C25k is?  Check out this link here!)

I have been trying out new (to me) walking trails and paths around our area and have been discovering some really beautiful and fun places to run.  98% of my runs have been pushing the boys in the jogging stroller though. And let me tell you, it has made C25k a lot more difficult.  But I do feel like I am getting into better shape quicker than I would have otherwise.

I have already signed up for a 5k on April 23rd (right after the boys’ first birthday!) (omg!) and if I keep on track I should be running the race instead of doing walking/jogging intervals.  If I’m not that far along, I’m fine with that too… but my goal is to be running and not walking at that point.

And, since I won’t be pushing a jogging stroller, I should be supa fast, right? Ha!

I think I am finally far enough along in the C25k training program that I don’t feel slightly hopeless and totally out of shape. It still isn’t fun, per-say… but I am enjoying my runs more and more. And I am definitely enjoying the way I feel afterwards.  Running for me is definitely addicting.  <<<<One thing I thought I would never say.

If you would have asked me a month ago if I felt like getting back in shape within a couple months was possible I would have laughed in your silly face.  I was getting winded just taking the boys on walks.  I thought having lupus would slow my efforts down, but like I said in my last blog, I just keep telling myself I can do this, and that I can change my body and that I AM.

bill phillips quote


This Blog is for You.

3-6 Run

I started C25k AGAIN!

I am on my second week and man, have I missed running.

It it not yet fun. I am thinking it is going to be a few more weeks before I start to enjoy it even a little bit.

Before re-starting C25k this time, the last time I ran was August 23, 2014. That was a long time ago.  I ran a 5k race that day. It was rough. I felt overheated, exhausted and I thought I shouldn’t have been. Little did I know that I was pregnant with twins at the time.  But, alas that was a LONG time ago. I had a nice long pregnancy, a tough time with a lot of things after the birth of my boys… but it feels like my life is starting to find its own new normalcy now.

August 23, 2014 seems like ages ago. And to my body, which has gone through many changes, it definitely was. I had not worked out much at all the last 19 months save the random walk or workout video here or there.  I am back at square one. Well, minus square one because I am not massaging full-time like I used to, and that kept me in better shape than being a mommy seems to be.

I lost the majority of the muscle I had. My body changed from carrying twins in my belly for 9 months.  My body fat percentage is much higher.

In 2008 when I first started this long road to becoming a healthier person I was starting at what I thought was the beginning.  I started walking.  Then I found out about Couch to 5k. I started that program and loved the feeling that little bit of running gave me, but it was so hard. So hard. The beginning was the roughest. I didn’t know if I could make it through each workout. I felt so hopeless. I felt like a big slobby, sweaty, slow mess.


I wanted to write a blog to stay updated on life, and running and babies and all of the things in my life right now… but I also wanted to write this blog for YOU.

You. The one who has  just started a new workout regimen. The one who has only just thought about it. The one who has never worked out a day in your life.  You might be me, circa 2008.

I do have something now that I wish I had back in 2008.

I know I can do this.  Because I did it once before. And believe me, if I can do this, you certainly can! I really wish I could transplant this thought/feeling into your brain that you can.

It isn’t going to be fun at first. It’s going to suck sometimes. You’ll feel like giving up. But don’t! It will all be worth it in the end.  That feeling you get at the end of your workout (even if it is just relief that you finished)? THAT will be intensified by a bazillion times when you squat the most you ever have in your life. When you cross the finish line at your first 5k. The first time you hold a plank for 2 minutes. Keep on looking to those huge milestones and the next and the next and the next.

So, as I huff and puff doing my C25k runs I keep telling myself this: I can do this. It’s so going to be worth it.   I hope you’ll join with me on this tough, awesome journey. 🙂

you can do this - defyinglupus

12 Tips on Staying Inspired

Loved this, so thought I’d share. Enjoy!


Staying Inspired

A New Adventure.

Yesterday, I got in to see my newest friend… a gastroenterologist!

Due to some digestive issues, he recommended I start a low FODMAP diet.  I started today.

Tomorrow I am having a liver biopsy.  What a lousy way to get a day off work!  The GI doc just wants to make sure I don’t have autoimmune hepatitis. I’m just hoping for a fatty liver! I never thought I would wish for that.  It would be so much easier to correct!

Anyway, I will update again once I find out the results from the biopsy and with how the low FODMAP diet is going.

Take care everyone!