Care Page – Sharing Lupus Resources

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Today’s Prompt:

  • Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self-advocacy!

 

Have you been newly diagnosed with Lupus? Check out these resources I found helpful in my own journey!

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Websites tackling Lupus basics and more:

Questions to Ask Your Doctor About Your Condition

Lupus Information Sheets on Lupus

Your Own Best Advocate: How to be an Active Participant in Your Care

Lupus Foundation of America (LFA)

Alliance for Lupus Research

We Have Lupus Forums

WebMD Lupus Community

Lupus International

S.L.E. Lupus Foundation

 

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Help with the emotional side of Lupus and autoimmune disease:

Managing Lupus Stress More Effectively by Changing Your Thoughts and Actions

Who Am I Now?: Living with an Autoimmune Disease

Quotes to help with Stress Relief

Meditation Talks

7 Strategies to Developing a Positive Mental Attitude

 

Books I have personally read and recommend:

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The First Year–Lupus: An Essential Guide for the Newly Diagnosed by Nancy C. Hanger

 

 

 

 

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Lupus Q + A by: Robert G. Lahita

 

 

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Women and Autoimmune Disease : The Mysterious Ways Your Body Betrays Itself by: Robert G. Lahita

 

 

 

 

 

 

Leave a comment with any great links or books on Lupus or autoimmune diseases that you would recommend!

Tell me what you think!