Lupus Awareness Month Day 2

May is Lupus Awareness Month!

Here is our fact for Day 2: Lupus affects nine times more women than men, and more women of color than white women. African-American and Latina women with no family history of lupus have about a one in 250 chance of developing the disease.

May is #LupusAwarenessMonth

In honor of May being Lupus Awareness Month, I am sharing a fact about lupus every day in May. Please share and raise awareness about lupus and its impact on the lives of millions of people like me, and our families.

Lupus Fact 1: There’s no cure for lupus, so current treatments include a focus on improving quality of life through controlling symptoms and minimizing flare-ups.

Please share! Let’s raise awareness so we may find a cure!

2018 Walk to End Lupus Now

We all want to live long, healthy lives. We don’t want to take medication full of side effects, have chronic pain, or experience days, weeks or even months where we are too ill to get out of bed. We want to see our children grow up, and hold our grandchildren in our arms.

I want greater odds of having that long, healthy life for me, and my children. The Lupus Foundation of America is working hard to help improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. That is why tomorrow morning I am walking to raise awareness and support in hopes that one day I can say I USED to have lupus.

You can help me make a difference. Give even just a few dollars towards my walk and help me raise awareness and hope for the 1.5 million people in the US fighting Lupus everyday.

http://chapters.lupus.org/site/TR/WTELN/LFAHeartlandChapter?px=1175202&pg=personal&fr_id=1580

Thank You For Featuring My Story H2W Apparel!

I’ve had a lot of ups and downs on my journey living with (and defying!) lupus, but this is definitely an up! Thank you to H2W Apparel  and Maggie O’Brien for featuring me and most importantly, raising awareness for SLE in the process. Maggie did an amazing job conveying just what I wanted to share (and condensed my ramblings, which must have been a task!) Thanks to H2W Apparel for having a heart for women and being open to listen and tell our stories.

Check out H2W Apparel’s blog HERE and be sure to leave a comment!

Lupus & Autoimmune Support Group

Have lupus or another autoimmune issue? Need a listening ear or just to know someone else might understand what you’re going through? I hope you’ll join us!

https://www.facebook.com/groups/defyinglupussupportgroup

Working on the Genetic Autoimmune Puzzle

I was reading this article about new research on lupus, genes and why it seems to afflict more men than women: https://www.statnews.com/2018/01/29/lupus-women-genetics/

So interesting!  I know I have genes that make me more susceptible to lupus and other autoimmune issues. I’m going to have to do more research of my own on this.

Have you had genetic testing? Did you find any interesting anomalies? Did you find any genes linked to lupus?